What a Week...

Phew...what a hectic week.Meeting, training, pending things and not to forget our lovely son Aniq..He now can smile and laughing with a long voice..It really make us laugh every single minutes..Haha...

Actually, I do enjoy reading others's blogs, well you may see the blog that we are following, but yet when it comes to share our story, I was blur. A lot of things I wanna write here, but sometime I really do not know where to start. It doesnt sound interesting anyway..Or maybe I am not a good writer or even a storyteller...hahaha...

You know, when Im browsing internet, searching and reading those blogs, who did shared about the same experience like us, I just realize that we are not the only parents who has this 'special' baby. But then, I dont see any in our community yet, especially Malaysia. Is good to see parents with this LP baby and at least we could exchange our experience. Im envy with those POLP community in US who did gathering, sharing and meeting each other for the update. They really supporting each other, but here.. Well, just like we are alone.. :(

During Aniq's appointment last month, the nurse shared with us about one family who has twin babies and one of the baby was diagnosed with Achondroplasia. But, the story just end there and I dont even know who are they. Maybe I need to search them so that this community will start with us..Nice ha? Or maybe I need to serch this community and join them..

How I wish that will be come true...At least Aniq will has friends who have about the same height with him..Is not that he cannot make a friend with others, but at least he could learn other stories that will inspire and motivate him.~

Appointment Calling!

Aniq is 'sitting' for the test.

As I told you earlier, there are a lot of appointments set for my baby Aniq and he will have at least one appointment every month.

26 May 2009, he is attending his first hearing test. The doc said those tests are required to know whether Aniq has any other abnormality. Aniq will need to sleep first before the test being done. So, the nurse give him something (crystal clear liquid) and ask him to finish it. It is a lot; pity Aniq. He cried when I did put the liquid into his mouth and scream like crazy. Well, I don't have any other choices. Really poor baby.

After about half an hour, Aniq fall asleep. The test takes about 30 minutes to finish. The Doc said the result is good and everything is normal with his hearing. Thank God. However, he will still be under monitoring. Hopefully everything would be okay.

A.N.I.Q R.A.Z.I.N

There must be a story behind each name. Just to share the meaning of Aniq Razin and why we choose this name.

Actually, I already think of this name few years back. Even that time I am still not yet married. When my sister was expecting, she didn't know whether the baby is girl or boy and ask me to find few names for her baby. I choose 2 names, one for baby girl and one for baby boy. When the baby is born, it is she, so, the girl name being choosen. Even though my sister's baby is now 6 years old, the baby boy's name still there and not being taken by anyone. When I was expecting, I told my hubby, Faizal about that name and he really love the name because of the meaning. Even we search so many names, still for us Aniq Razin is the best.

In Arabic, Aniq means elegant and Razin means someone who has kind hearted. That is what we wish our son would be. Someone who is always elegant to us and kind hearted to everyone so he will be loved the way he is.

What is Achondroplasia?

When the doctor called me through the phone and inform that our baby was diagnosed with Achondroplasia, I don't even know what it is all about. Asking the doc to spell the word, I quickly type in google to find out the thing.

Wikipedia define the word as a type of autosomal dominant genetic disorder that is a common cause of dwarfism. Achondroplastic dwarfs have short stature, with an average adult height of 131 cm (4 feet, 3-1/2 inches) for males and 123 cm (4 feet, 1/2 inches) for females.
The prevalence is approximately 1 in 25,000.

I put down the phone and immediately called my sister as she is also a doctor. When I mention the word, she then explain that achondroplasia baby will grow up but not that tall. In other word, my baby will grow up as a dwarf. But yet she mention to wait until the baby come out and see how was it. She advicesd that we have to be emotionally prepared on any consequences that might happen.

Deep inside my heart, I was worried, hoping what the doc said was wrong and hope our baby will be just fine. We do pray hoping for miracle to happen and our baby come out just normal like others.

Upon that discovery, I told the story to my peers at office and most of them wished everything would be fine. One of my peer said, we do not know the future of our baby, maybe he could be someone that nobody could be and bring luck to our family. Yes, who knows and I only wish the best for our baby.

Yes, it is not that easy to accept what the doc was said. We still keep on pray..pray..pray.. and hoping the miracle will happen until one day I ask one Ustaz to say a pray for our baby and he replied, 'God created every single things for reason. No worry with what God give us and believe there must be something special in it.'

That special words inspire me a lot, and we believe our baby is a special gift from God and we are the special parents to receive that gift.

Our Precious Baby

Finally, I already created and have my own blog. Taking quite sometime to have one. Yeah, I know, it is quite difficult to spend time writing here as I am a working mommy and when Im back home, most of my time spent is for my little baby, Aniq.

To begin our story, as you may read on the right hand side of this blog, how it was started. Knowing about our 'little' baby's measurement is not right during pregnancy is the most critical part to our family especially me. And about 1 week before delivery, the Doc tell us that our baby was diagnosed with Achondroplasia. I do not know how to describe my feelings that time. It is all mixed, nervous, worried, scared, surprised, confused, all in one. Yes, I am really worried and not even 1 day I can't sleep well until the day I give birth.

First impression, Aniq is just like other babies, screaming and crying when he come out to this world, has complete fingers, legs and hands, and looking at his face just enough to say that we are lucky parent to have such a cute baby like him.

However, few minutes later, the Doc come to see him closely, and slowly the Doc come whispered to me and said 'His hands and legs a bit short, we will refer to Paedetrician to review your baby'. Well, all I can do is just pray that the Doc was wrong.

If other babies can discharge from hospital after one day stay, not for Aniq. As early as one day old, he already has several appointments setted for him. And as early as 2 days old, the Doc already do Xray to see the shortness of his limb. Seeing other newborn babies aged Aniq going back home after one day stay, my heart feel so touched. Why not Aniq? He only can go back home after 4 days and not to forget together with all his appointments.

Well, Aniq now already 10 weeks old and all I can say about him is, he such a cute happy baby and miss of one day talking to him make my life feel incomplete. I will keep writing here to share our experience as we also enjoy reading others' story.

Thanks all for sharing!